NHS Digital is the national custodian for health and care data in England and has responsibility for standardising, collecting, analysing, publishing and sharing data and information from across the health and social care system, including general practice.
NHS Digital collected patient data from general practices using a service called the General Practice Extraction Service (GPES), which has operated for over 10 years and now needs to be replaced. Data collected from general practice is needed to support a wide variety of research and analysis to help run and improve health and care services.
If you don’t want your identifiable patient data to be shared for purposes except for your own care, you can opt-out by registering a Type 1 Opt-out (data being extracted from your GP practice) or a National Data Opt-out (data already extracted & being shared by NHS Digital), or both. These opt-outs are different and they are explained in more detail below. Your individual care will not be affected if you opt-out using either option.